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Home
Paediatric Palliative Care
Palliative Care Services
Patient / Carer Information
Health Professionals
Education & Training Resources
Resources to Inform Clinical Practice
Wellbeing & Self-care
Communication Skills
Family Related Resources
Cultural & Spiritual Resources
Memory Making
Symptom Management
Advance Care Planning
Grief & Bereavement
Quality Improvement in Paediatric Palliative Care
Website Links
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On the Road with QuoCCA
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Publications
Publications
On the Road with QuoCCA
Calendar of Events
Publications
Manuscripts
Gundry, Elvidge, Donovan, Bunker, Herbert & Bradford. (2023).
Parent and Provider Perspectives of a Hospital-Based Bereavement Support Program in Pediatric Palliative Care.
Journal of Pain and Symptom Management, 65(5), 388-399.
Noyes, Delaney, Lang, Maybury, Moloney & Bradford. (2023).
Preparing for Death While Investing in Life: A Narrative Inquiry and Case Report of Home-Based Paediatric Palliative, End-of-Life, and After-Death Care.
Children, 10, 1777.
Slater & Herbert. (2023).
Education and mentoring of specialist pediatric palliative care medical and nursing trainees: The Quality of Care Collaborative Australia.
Advances in Medical Education and Practice, 43-60.
Donovan, Slater, Delaney, Baggio & Herbert. (2022).
Building capability in paediatric palliative care and enhancing education through the voice of parents: the Quality of Care Collaborative Australia.
Palliat Care Soc Pract. 16:1-14. doi:10.1177/26323524221128835.
Noyes, Herbert, Moloney, Irving & Bradford. (2022).
Location of end-of-life care of children with cancer: A systematic review of parent experiences.
Pediatric Blood Cancer, 60, e29621.
Iten, O'Connor, Cuddeford & Gill. (2022).
Care management trajectories of infants with life-limiting conditions who died before 12 months of age: a retrospective patient health record review.
Journal of Pediatric Nursing.
Slater, Hastings, Nicholson, Noyes, Benitez, Pollock, Peacock, Cox, Gunning, Caris, Petersen, Henry, Spanner, Becket & Chisholm. (2022).
Fifteen years of shared care for paediatric oncology, haematology and palliative care across Queensland: The role of Regional Case Managers.
Australian Journal of Rural Health.
Slater, Osborne, & Herbert. (2021).
Ongoing value and practice improvement outcomes from pediatric palliative care education: the Quality of Care Collaborative Australia.
Adv Med Educ Pract. 12:1189-1198. doi:10.2147/AMEP.S334872.
Radford, Marshall, Herbert, Irving & Weir. (2020).
Risk feeding: An Australian paediatric palliative care perspective.
Perspectives of the American Speech and Hearing Association Special Interest Groups, 5(2), 515-521 [invited paper].
Donovan, Slater, Delaney, Baggio & Herbert. (2019).
Perspectives of health professionals and educators on the outcomes of a national education project in pediatric palliative care: the Quality of Care Collaborative Australia.
Adv Med Educ Pract. 10:949-958. doi:10.2147/AMEP.S219721.\
Slater, Herbert, Baggio, Donovan, McLarty, Duffield et al. (2018).
Evaluating the impact of national education in pediatric palliative care: the Quality of Care Collaborative Australia.
Adv Med Educ Pract. 14;9:927-941. doi: 10.2147/AMEP.S180526.
Baggio, Herbert, Delaney, McLarty, Slater, Donovan, Pedersen & Johnson. (2017).
A national quality of care collaboration to improve paediatric palliative care outcomes.
Prepared for the 14th National Rural Health Conference, Cairns, Australia.
Posters
Tan & Herbert. (2025).
Every child matters - How a tertiary Paediatric Palliative Care Service in Queensland strives to care for children with Trisomy 18 and their families.
Presented at the Perinatal Society of Australia and New Zealand Congress, Brisbane, Australia.
Duffield, Jolly, McLarty, Delaney, Gundry, Heywood & Slater. (2023, Sept).
From Joey to QuoCCA: approaching 10 years of paediatric palliative care education.
Presented at the Oceanic Palliative Care Conference, Sydney, Australia.
Gordon & Tan. (2023, Sept).
Will Lumpy Junk Make Me Die? Advance Care Planning Conversations with Children.
Presented at the Oceanic Palliative Care Conference, Sydney, Australia.
Herbert & Slater. (2023, Sept).
Mentoring specialist paediatric palliative care trainees.
Presented at the Oceanic Palliative Care Conference, Sydney, Australia.
Gundry. (2022, Oct).
What Now? ... Good grief, this hurts! (GGTH) Focusing on the experience of children's bereavement.
Presented at the Australian Paediatric Palliative Care Conference, (virtual) Australia.
Gilmour, Oldham & Mott, on behalf of PAN-PC Perinatal Antenatal Neonatal Palliative Care. (2022, Oct).
PAN-PC: A multi-organizational, multi-professional innovative perinatal palliative care collaboration.
Presented at the Australian Paediatric Palliative Care Conference, (virtual) Australia.
Donovan, Slater, Delaney, Baggio & Herbert. (2022, Oct).
Building capacity in paediatric palliative care through the voice of the parents: the Quality of Care Collaborative Australia.
Presented at the Australian Paediatric Palliative Care Conference, (virtual) Australia.
Slater, Herbert, Baggio, Donovan, McLarty, Duffield, Pedersen, Duc, Delaney, Johnson, Heywood & Burr. (2019, Sept).
Evaluating the impact of national education in paediatric palliative care: Quality of Care Collaborative Australia (QuoCCA).
Presented at the Oceanic Palliative Care Conference, Perth, Australia.
Ryan, Trethwie, Slater, Pedersen, Johnson & Herbert. (2019, Sept).
An initiative to develop the Paediatric Palliative Medical Workforce within Australia.
Presented at the Oceanic Palliative Care Conference, Perth, Australia.
Herbert. (2017, Sept).
How to Cultivate Compassion - from the Paediatric Palliative Care Trenches.
Presented at the Palliative Care Australia Conference, Adelaide, Australia.
Herbert, Irving, Pedersen, Baggio, Delaney, Donovan, McLarty, Duc, Edgworth, Slater, Johnson, Trethewie, Ryan, Hynson, Heywood, Fleming, Duffield, Phillips, Momber & Burr. (2017, May).
Quality of Care Collaborative Australia for Paediatric Palliative Care (QuoCCA).
Presented at the ASPHO Annual Meeting, Montreal, Canada.
Duc & Herbert. (2016, Nov). Use of Methylphenidate in a Paediatric Oncology Patient with Fatigue. In: 3rd Congress on Paediatric Palliative Care - A Global Gathering, Rome, Italy.
Donovan, Wakefield, Russell, Fardell, Cohn & Lichtenthal. (2016, Oct).
Bridging the chasm between hospital and home: bereaved parents informing a contemporary model of transitional bereavement care.
Presented at the 4th Australian Palliative Care Research Colloquium, Melbourne, Australia.
Baggio, Herbert, McLarty, Delaney, Duc, Pedersen & Slater. (2016, Oct).
A National Quality of Care Collaboration for Improving Paediatric Palliative Care Outcomes. Phase 1: Learning Needs and Capability.
South Brisbane, QLD: QuoCCA.
Herbert, Slater, Pedersen, Johnson, Irving, McLarty, Baggio, Delaney, Duc, Trethewie, Phillips, Momber, Burr, Hynson, Heywood, Ryan, Fleming & Duffield. (2016, June)
Quality of Care Collaborative - Australia (QuoCCA) for Paediatric Palliative Care.
Presented at the ANZCHOG Annual Scientific Meeting, Cairns, Australia.
Herbert, Slater, Pedersen, Johnson, Irving, McLarty, Baggio, Delaney, Duc, Phillips, Momber, Burr, Hynson, Heywood, Ryan, Trethewie, Fleming, & Duffield. (2016, April). Quality of Care Collaborative for Paediatric Palliative Care in Australia (QuoCCA). In: Caring for Country Kids, Alice Springs, Australia,
Herbert, Baggio, Delaney, McLarty, Duc, Pedersen et al. (2016).
Improving the Nation-wide outcomes for children and families supported by Paediatric Palliative Care: A National Quality of Care Collaborative.
South Brisbane, QLD: QuoCCA.
Herbert, Slater, Pedersen, Johnson, Irving, Phillips, Momber, Hynson, Collins, Mherekumombe, Ryan, Trethewie, Fleming & Duffield. (2015, Sept).
Paediatric Palliative Care National Education and Quality Improvement Collaborative.
Presented at the Australian Palliative Care Conference, Melbourne, Australia.
Pedersen & Gordon. (2015)
Thinking outside the box: A cadet model for Nurse Practitioners.
South Brisbane, QLD: QuoCCA.
Pedersen. (2015)
Making a difference: a pop-up model for PPC.
South Brisbane, QLD: QuoCCA.
Powers. (2012).
Occupational Therapy in Paediatric Palliative Care: The New Direction.
Presented at the ANZCHOG Annual Scientific Meeting, The Gold Coast, Australia.
Conference Presentations
Dr Alison Bowers. (2022). Paediatric Palliative Care across Australia.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Claire Radford & Dr Kelly Weir. (2022). Fundamentals of Paediatric Palliative Care: Developing an online education package for regional allied health professionals.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Karen Joy. (2022). Til the wheels fall off: Multicultural care for young people facing the end of their life.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Sarah Baggio. (2022). Taking care of both sides of the 'system' fence.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Julie Duffield & Angela Delaney. (2022). Returning to Country: Building capacity for equitable, accessible Paediatric Palliative Care.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Julie Anania & Leah Rotin. (2022). Paediatric Palliative Care: Perspectives and experiences of allied health professionals (AHPs).
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Kerry Gordon & Andrea Coe. (2022). Paediatric Palliative Care: A collaborative approach, hospital, hospice and community.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Michelle Noyes & Angela Delaney. (2022). Who will care for me when I get older? Facilitating difficult conversations with dying children and their families.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Alyson Gundry. (2022). We're all ears: Conversation tools supporting advance care planning in paediatrics.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Leah Rotin & Julie Anania. (2022). The power of parents in education and resource development - an interactive workshop.
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Karen Jardine. (2022). Watch your step: you are now entering the zone of parental discretion [workshop].
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Dr Naomi Katz, Angela Delaney, Greg Wheeler & Julie Anania. (2022). Symptom management in Paediatric Palliative Care [panel discussion].
Australian Paediatric Palliative Care Conference, (virtual) Australia.
Dr Penny Slater, Caroline Osbourne, & Dr Anthony Herbert. (2021, Sept).
Long term value and practice improvements: QuoCCA Outcomes.
Presented at the Oceanic Palliative Care Conference, Australia.
Claire Radford, Dr Anthony Herbert, Susan Johnson, Tracy Till, Kim Thornton & Lucy Powers. (2021, June). The Care Plan for the Dying Child. Presented at the Australian and New Zealand Children's Haematology and Oncology Group Scientific Meeting, (virtual), Australia and New Zealand.
Dr Penny Slater & Dr Leigh Donovan. (2020, May).
The impact of QuoCCA education and factors that enhance workforce capability and education outcomes.
Presented at the 7th Rural and Remote Health Scientific Symposium, Australia.
Claire Radford, Dr Anthony Herbert, Susan Johnson, Tracy Till, Kim Thornton & Lucy Powers.
(2019, June). Developing the Care Plan for the Dying Child. Presented at the Care at End of Life Strategy Forum, Brisbane, Australia.
Dr Herbert, Anthony & Sarah Baggio. (2017, Sept). Supporting children receiving palliative care in regional, rural and remote locations of Australia through pop-up education. Presnted at the Australian Palliative Care Conference, Adelaide, Australia.
Sarah Baggio, Dr Anthony Herbert, Angela Delaney, Alison McLarty, Dr Penny Slater, Dr Leigh Donovan, Lee-Anne Pedersen & Susan. (2017, April). A national quality of care collaboration to improve paediatric palliative care outcomes. Presented at the 14th National Rural Health Conference Proceedings. National Rural Health Conference, Cairns, Australia.
Dr Anthony Herbert, Sarah Baggio, Dr Penny Slater, Lee-Anne Pedersen & Angela Delaney. (2016, Nov). Improving nation-wide outcomes for children and families supported by paediatric palliative care. A national quality of care collaborative. Presented at the 3rd Congress on Paediatric Palliative Care - A Global Gathering, Rome, Italy.
Dr Anthony Herbert et al. (2016, Nov). Quality of Care Collaborative of Australia (QuoCCA) for paediatric palliative care (PPC). Presented at the 2nd Annual Children's Health Queensland Research Symposium, Brisbane, QLD, Australia.
Sarah Baggio, Dr Anthony Herbert, Alison McLarty, Angela Delaney, Dr Jacqui Duc, Lee-Anne Pedersen & Dr Penny Slater. (2016, Oct). Improving the nation-wide outcomes for children and families supported by paediatric palliative care: phase 1 learning needs and capability. A national quality of care collaboration. Presented at the 4th Australian Palliative Care Research Colloquium, Melbourne, Australia.
Alison McLarty, Dr Anthony Herbert, Sarah Baggio, Angela Delaney, Dr Jacqui Duc, Lee-Anne Pedersen & Dr Penny Slater. (2016 Oct). Improving the nation-wide outcomes for children and families supported by paediatric palliative care: A national collaboration. Presented at the 4th Australian Palliative Care Research Colloquium, Melbourne, Australia.
Dr Anthony Hebert, Sarah Baggio & Dr Leigh Donovan, L. (2016, May). Paediatric Palliative Care - Models of Care. Presented at the 15th Annual Research Conference, Centre for Palliative Care Research and Education, Brisbane, Australia.
Dr Anthony Herbert et al. (2016, March). Quality of Care Collaborative Australia (QuoCCA) for paediatric palliative care education. Presented at The Children's Hospital at Westmead 12th Annual Paediatric Palliative Care Symposium, Sydney, Australia.
Dr Anthony Herbert. (2015, Sept).
Paediatric Palliative Care National Education and Quality Improvement Collaborative
. Presented at the Australian Paediatric Palliative Care Conference, Australia.
Dr Alison Bowers. Planning for paediatric palliative care services in Queensland: An analysis of epidemiological data for 2011 and 2016
Dr Leigh Donovan. Beyond Death: Responding to the care of the bereaved within the Australian hospital and health system.
Dr Leigh Donovan. Enhancing workforce capability in paediatric palliative care : Perspectives of health professionals and educators in Australia
Dr Anthony Herbert. The role and use of humour in palliative care
Dr Natalie Bradford. Finding a way with words. Development of a discussion prompt list for PPC
Dr Naomi Katz. Paediatric advance care planning: a training expedition.
CareSearch Blogs
Page updated 31 July 2023